FASD Connections is committed to building a community in which adolescents and adults with Fetal Alcohol Spectrum Disorder are included and encouraged and where their desire and potential is supported; where the experience of families is understood, acknowledged, and accepted; and where systems are equipped to respond in an informed, compassionate and responsible way.
Quality of life seems like such an obvious goal, one which all of us would support. The reality, however, for all of us involved with FASD is something quite different. The levels of distress this lack generates cannot be over-stated. Guilt, frustration, pain, anger, a feeling of powerlessness and hopelessness and the emotional after effects that happen when parents know they cannot – alone – help their adult children; when they can no longer fulfill their moral, social, value driven and emotional commitments to their children – those “ethical obligations” of parenting that transcend age.
The progressive erosion of quality of life as children and families grow into the future is not addressed by existing services, policies or ideologies. They are currently not equipped to handle this issue on even the most basic of levels. Systemic and systematic change is not only needed, but is essential for the very survival of the adolescents, adults and families we cherish.
Albert Einstein said: “The problems that we face cannot be solved by the same level of thinking that created them”