Quality of Life

<body topmargin=0 leftmargin=0 marginheight=0 marginwidth=0> <table cellpadding=0 cellspacing=0 border=0><tr> <td valign="top" colspan=2 height=90 BGCOLOR="#006699" TEXT="#080000" background="07d085a3.jpg"> <div> <FONT SIZE="6" COLOR="#FF9900" FACE="Arial" ><I><B>FASD Connections: </B></I></FONT><FONT SIZE="1" COLOR="#000000" FACE="Arial" ><B>                           </B></FONT><B>  |  </B><A HREF="index.htm" TARGET="_top" TITLE="FASD Connections: "><B>Home</B></A><B>   |  </B><A HREF="id28.htm" TARGET="_top" TITLE="Mission"><B>Mission</B></A><B>  |  </B><A HREF="id27.htm" TARGET="_top" TITLE="About Us"><B>About Us</B></A><B>   |</B></div> <DIV ALIGN="LEFT"></DIV> <div> <B>| </B><A HREF="id25.htm" TARGET="_top" TITLE="Critical Issues"><B>Critical Issues</B></A><B>  |  </B><A HREF="id22.htm" TARGET="_top" TITLE="Feature Articles"><B>Feature Articles</B></A><B>  |  </B><A HREF="id33.htm" TARGET="_top" TITLE="In Their Own Words"><B>In Their Own Words</B></A><B>  |  </B><A HREF="id34.htm" TARGET="_top" TITLE="Research Participation"><B>Research Participation</B></A><B>  |  </B><A HREF="id35.htm" TARGET="_top" TITLE="The Birth Moms Page"><B>Birth Mom's Page</B></A><B>  |  </B><A HREF="id17.htm" TARGET="_top" TITLE="Events"><B>Events</B></A><B>  |  </B><A HREF="id19.htm" TARGET="_top" TITLE="Contact Us"><B>Contact Us </B></A><B> |  </B><A HREF="id105.htm" TARGET="_top" TITLE="Whats New"><B>What's New</B></A><B>  |</B></div> <div> </div> </td> </tr><tr> <td valign="top" width=210 BGCOLOR="#FFFFFF" TEXT="#080000" background="07ed2e83.jpg"> <div> <IMG SRC="2c162550.png" border=0 width="98" height="85" ALT="Starfish" ALIGN="BOTTOM" HSPACE="0" VSPACE="0"></div> <bR> <div> <I><B>"Because it makes a </B></I></div> <div> <I><B>difference to this one."</B></I></div> <div>   Loren Eiseley</div> <div> <B>Did you Know? . . . </B></div> <div> <FONT SIZE="2" COLOR="#FFFFFF" FACE="Arial" >For Adults with FASD, 80% are unable to live independently, regardless of IQ </FONT>(Streissguth et al. <U>Understanding the Occurrence of Secondary Disabilities in Clients with FAS/FAE</U>)</div> </td> <td valign="top" height=390 width="100%" BGCOLOR="#FFFFFF" TEXT="#080000" background="07f07073.jpg"> <div>  <A NAME="quality_of_life"><IMG BORDER="0" SRC="1x1.gif" HEIGHT="1" ALIGN="bottom" WIDTH="1" HSPACE="0" VSPACE="0" ></A><B><U>Quality of Life</U></B></div> <div> <B><U> <SCRIPT language="JavaScript">  </SCRIPT> <br> <BODY BGCOLOR="FFFFFF"> <CENTER> <FORM NAME="myform"> <SELECT NAME="dest" SIZE=1> <OPTION SELECTED VALUE="">--------------- Browse Another Topic! -------------- <OPTION VALUE="http://www.fasdconnections.ca/id57.htm">Aboriginal <OPTION VALUE="http://www.fasdconnections.ca/id80.htm">Addictions Treatment <OPTION VALUE="http://www.fasdconnections.ca/id56.htm">Adult ADHD <OPTION VALUE="http://www.fasdconnections.ca/id55.htm">Alcohol and Addiction <OPTION VALUE="http://www.fasdconnections.ca/id53.htm">Alcohol, Addiction and Violence <OPTION VALUE="http://www.fasdconnections.ca/id49.htm">Alcohol, Women and Pregnancy <OPTION VALUE="http://www.fasdconnections.ca/id54.htm">Animal Research <OPTION VALUE="http://www.fasdconnections.ca/id59.htm">The Brain <OPTION VALUE="http://www.fasdconnections.ca/id114.htm">Caregiver Supports and Issues <OPTION VALUE="http://www.fasdconnections.ca/id65.htm">Children of Alcoholics <OPTION VALUE="http://www.fasdconnections.ca/id66.htm">Community <OPTION VALUE="http://www.fasdconnections.ca/id81.htm">Economics <OPTION VALUE="http://www.fasdconnections.ca/id82.htm">Education <OPTION VALUE="http://www.fasdconnections.ca/id67.htm">Employment <OPTION VALUE="http://www.fasdconnections.ca/id68.htm">Family <OPTION VALUE="http://www.fasdconnections.ca/id112.htm">FASD <OPTION VALUE="http://www.fasdconnections.ca/id111.htm">Grandparent & Kinship Care <OPTION VALUE="http://www.fasdconnections.ca/id69.htm">Guidebooks and Manuals <OPTION VALUE="http://www.fasdconnections.ca/id103.htm">Historical <OPTION VALUE="http://www.fasdconnections.ca/id83.htm">Homelessness <OPTION VALUE="http://www.fasdconnections.ca/id93.htm">International Links <OPTION VALUE="http://www.fasdconnections.ca/id84.htm">Justice and Legal Issues <OPTION VALUE="http://www.fasdconnections.ca/id94.htm">Key Documents <OPTION VALUE="http://www.fasdconnections.ca/id104.htm">Labelling <OPTION VALUE="http://www.fasdconnections.ca/id95.htm">Medical <OPTION VALUE="http://www.fasdconnections.ca/id96.htm">Medications <OPTION VALUE="http://www.fasdconnections.ca/id97.htm">Mental Health <OPTION VALUE="http://www.fasdconnections.ca/id98.htm">Paternal Effects <OPTION VALUE="http://www.fasdconnections.ca/id99.htm">Policy and Position Statements <OPTION VALUE="http://www.fasdconnections.ca/id100.htm">Prenatal Alcohol Exposure & the Brain <OPTION VALUE="http://www.fasdconnections.ca/id101.htm">Prenatal Drug Exposure <OPTION VALUE="http://www.fasdconnections.ca/id86.htm">Prevalence <OPTION VALUE="http://www.fasdconnections.ca/id85.htm">Prevention <OPTION VALUE="http://www.fasdconnections.ca/id87.htm">Quality of Life <OPTION VALUE="http://www.fasdconnections.ca/id88.htm">Screening and Diagnosis <OPTION VALUE="http://www.fasdconnections.ca/id89.htm">Social Services <OPTION VALUE="http://www.fasdconnections.ca/id90.htm">Supported Parents with Disabilities <OPTION VALUE="http://www.fasdconnections.ca/id110.htm">Transition & Supports <OPTION VALUE="http://www.fasdconnections.ca/id91.htm">Women and Violence <OPTION VALUE="http://www.fasdconnections.ca/id92.htm">Additional Links <OPTION VALUE="http://www.fasdconnections.ca/id102.htm">Articles en Français <OPTION VALUE="http://www.fasdconnections.ca/HTMLobj-394/suggested_reading_list.pdf">Suggested Reading List </SELECT> <P> <INPUT TYPE="BUTTON" VALUE="GO to Chosen TOPIC!" onClick="surfto(this.form)"> </FORM></CENTER>  </U></B></div> <bR> <div> <B><IMG BORDER="0" SRC="Wing0a73007700c8cc000000.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">NEW!  </B><FONT SIZE="2" COLOR="#990000" FACE="Arial" ><A HREF="http://pubs.niaaa.nih.gov/publications/arh341/64-75.pdf" TARGET="_top" TITLE="http://pubs.niaaa.nih.gov/publications/a"><U>Behavioral Interventions for Children and Adolescents With Fetal Alcohol Spectrum Disorders;</U></A></FONT><FONT SIZE="2" COLOR="#000000" FACE="Arial" > by Blair Paley and Mary J. O’Connor; Alcohol Research & Health, The Journal of the National Institute on Alcohol Abuse and Alcoholism; Vol 34, No 1, 2011</FONT></div> <div> <A HREF="https://circle.ubc.ca/bitstream/handle/2429/6445/ubc_1997-0483.pdf?sequence=1" TARGET="_top" TITLE="https://circle.ubc.ca/bitstream/handle/2"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Maneuvering The Maze: Exploring The Experiences. Of Fetal Alcohol Effected Adults; by. Darlene Straarup;</U></A><FONT SIZE="2" COLOR="#000000" FACE="Arial" > A thesis, University of British Columbia, 1988</FONT></div> <div> <A HREF="http://casat.unr.edu/docs/quality_of_life_2005.pdf" TARGET="_top" TITLE="http://casat.unr.edu/docs/quality_of_lif"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Quality of Life and Psychosocial Profile Among Young Women With Fetal Alcohol Spectrum Disorders; </U></A><FONT SIZE="2" COLOR="#000000" FACE="Arial" >by Therese Grant, Janet Huggins, Paul Connor, and Ann Streissguth; Mental Health Aspects of Developmental Disabilities April/May/June 2005 Vol. 8, No. 2</FONT></div> <div> <FONT SIZE="2" COLOR="#990000" FACE="Arial" ><A HREF="http://www.pubmedcentral.nih.gov/picrender.fcgi?artid=1617087&blobtype=pdf" TARGET="_top" TITLE="http://www.pubmedcentral.nih.gov/picrend"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Health-Related Quality Of Life Of Canadian Children And Youth Prenatally Exposed To Alcohol;</U></A></FONT> by Brenda C Stade, Bonnie Stevens, Wendy J Ungar, Joseph Beyene and Gideon Koren; <I>Health and Quality of Life Outcomes; </I>Vol 4, No. 81, 2006</div> <div> <A HREF="http://www.collectionscanada.gc.ca/obj/s4/f2/dsk2/tape16/PQDD_0005/MQ32674.pdf" TARGET="_top" TITLE="http://www.collectionscanada.gc.ca/obj/s"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Parents of Adult Offspring with Developmental disabilities: Stress, Coping and Family Functioning;</U></A><FONT SIZE="2" COLOR="#000000" FACE="Arial" > by Allison Peck; Thesis, Master of Arts, Department of Psychology Foundations of Education; University of Victoria, 1999</FONT></div> <div> <A HREF="http://www.collectionscanada.gc.ca/obj/s4/f2/dsk1/tape10/PQDD_0021/MQ52718.pdf" TARGET="_top" TITLE="http://www.collectionscanada.gc.ca/obj/s"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Advocacy, Stress, and Quality of Life in Parents of Children with Developmental Disabilities;</U></A><FONT SIZE="2" COLOR="#000000" FACE="Arial" >  by Jennifer S. Nachshen; Thesis - Master of Arts in Psychology; Lakehead University, 1999</FONT></div> <div> <A HREF="http://www.collectionscanada.gc.ca/obj/s4/f2/dsk1/tape9/PQDD_0028/NQ38967.pdf" TARGET="_top" TITLE="http://www.collectionscanada.gc.ca/obj/s"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">How Poverty Shapes Women's Experiences of Health During Pregnancy</U></A><A HREF="http://www.collectionscanada.gc.ca/obj/s4/f2/dsk1/tape9/PQDD_0028/NQ38967.pdf" TARGET="_top" TITLE="http://www.collectionscanada.gc.ca/obj/s">:</A><FONT SIZE="2" COLOR="#000000" FACE="Arial" > A Grounded Theory Study; Joanne Marie Roussy; University of B.C., 1999</FONT></div> <div> <FONT SIZE="2" COLOR="#990000" FACE="Arial" ><A HREF="http://www.motherisk.org/JFAS_documents/Secondary_Disabilities_Adults.pdf" TARGET="_top" TITLE="http://www.motherisk.org/JFAS_documents/"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Secondary Disabilities Among Adults with Fetal Alcohol Spectrum Disorder in British Columbia</U></A></FONT><A HREF="http://www.motherisk.org/JFAS_documents/Secondary_Disabilities_Adults.pdf" TARGET="_top" TITLE="http://www.motherisk.org/JFAS_documents/">,</A> by Erica Clark, Jan Lutke, Patricia Minnes, and Helene Oullette-Kuntz. <I>Journal of FAS International </I>(2004).</div> <div> <A HREF="http://www.collectionscanada.gc.ca/obj/s4/f2/dsk3/ftp05/nq21597.pdf" TARGET="_top" TITLE="http://www.collectionscanada.gc.ca/obj/s"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Listening to the Voiceless Ones: Women with Fetal Alcohol Syndrome and Fetal Alcohol Effect,</U></A><FONT SIZE="2" COLOR="#000000" FACE="Arial" > by Valerie J. Massey. A Doctoral Thesis, Department of Elementary Education , University of Alberta (1997).</FONT></div> <div> <U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Community Integration and Independence among Adults with Fetal Alcohol Spectrum Disorder in British Columbia</U><FONT SIZE="2" COLOR="#000000" FACE="Arial" >, by Erica Catherine Clark (2003).  </FONT><B> <a href="HTMLobj-787/Ericas_Dissertation_-__FASD_Quality_of_Life_Study.pdf"><u>(View pdf file here)</u> </a>  </B></div> <div> <A HREF="http://www.collectionscanada.gc.ca/obj/s4/f2/dsk3/ftp05/MQ62546.pdf" TARGET="_top" TITLE="http://www.collectionscanada.gc.ca/obj/s"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Searching for, Finding and Experiencing Friendship: A Qualitative Study of Friendship Experiences of Seven Young Adults with Fetal Alcohol Syndrome/Effects</U></A><U>,</U><FONT SIZE="2" COLOR="#000000" FACE="Arial" > by Brenda Copeland (2002).</FONT></div> <div> <FONT SIZE="2" COLOR="#990000" FACE="Arial" ><A HREF="http://www.collectionscanada.gc.ca/obj/s4/f2/dsk2/ftp02/NQ42964.pdf" TARGET="_top" TITLE="http://www.collectionscanada.gc.ca/obj/s"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Disablement, Context, and Quality of Life After Brain Injury: Measuring What Matters</U></A></FONT><A HREF="http://www.collectionscanada.gc.ca/obj/s4/f2/dsk2/ftp02/NQ42964.pdf" TARGET="_top" TITLE="http://www.collectionscanada.gc.ca/obj/s">,</A> by Mary-Lou Nolte . A Doctoral Thesis, Dept. of Psychology, Queen's University (1999). </div> <div> <A HREF="http://www.fmhi.usf.edu/institute/pubs/pdf/mhlp/qol.pdf" TARGET="_top" TITLE="http://www.fmhi.usf.edu/institute/pubs/p"><U><IMG BORDER="0" SRC="Wing0a73007700c800009900.png" HEIGHT="13" WIDTH="24" ALIGN="bottom" HSPACE="0" VSPACE="0">Quality of Life Assessment Project: Quality of Life Assessment Manual</U></A><FONT SIZE="2" COLOR="#000000" FACE="Arial" >, by Marion A. Becker, Bret R. Shaw, and Lisa M. Reib. (Was developed for individuals and families impacted by Schizophrenia, however has some relevant information to FASD)</FONT></div> <div> <A HREF="#quality_of_life" TITLE="Quality of Life"><B>(Return to Top)</B></A></div> <DIV ALIGN="LEFT"></DIV> <div> <A HREF="id25.htm" TARGET="_top" TITLE="Critical Issues"><B><U>Return to Critical Issues Topics</U></B></A> <FONT SIZE="2" COLOR="#000000" FACE="Arial" ><IMG SRC="180342d0.png" border=0 width="52" height="45" ALT="Starfish" ALIGN="BOTTOM" HSPACE="0" VSPACE="0"></FONT></div> <div> <B><U>  <script type="text/javascript" language="javascript"> var sc_project=1338665; var sc_invisible=1; var sc_partition=12; var sc_security="7db213b3"; </script>  </U></B></div> </td> </tr></table></body>